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  4. kidney failure patients and end life care decisions
Man undergoing dialysis

Kidney failure patients and end-of-life care decisions

Interventions for patient involvement in decision-making

A recent scoping review has explored empirical evidence concerning patient involvement interventions tailored to assist patients with kidney failure in making decisions about end-of-life care within kidney services. 

By compiling and categorising existing empirical evidence, the review aims to offer a comprehensive overview of interventions tailored for kidney failure patients facing decisions about end-of-life care. 

The findings of the scoping review point to the importance of engaging a diverse range of stakeholders in end-of-life care decision-making for kidney failure patients. 

The Making Informed Decisions Individually and Together (MIND-IT) intervention framework was used to categorise stakeholder involvement, highlighting the common practice of involving patients, family members, and healthcare professionals together, often focusing on shared decision-making.
 Four Ven diagrams related to stakeholders targeted by patient involvement interventions for patients with kidney failure making end-of-life care decisions
Figure 1: Stakeholders targeted by patient involvement interventions for patients with kidney failure making end-of-life care decisions

Involving all necessary stakeholders was emphasised as crucial for successful shared decision-making in end-of-life care choices.

Important resources for end-of-life care decisions included advance directives, goals of care, shared decision-making tools, patient decision aids, peer mentoring, patient education, and communication training.

The scoping review is available in the August issue of JBI Evidence Synthesis

Patient involvement interventions for patients with kidney failure making end-of-life care decisions: a scoping review

Buur, Louise Engelbrecht; Bekker, Hilary Louise; Madsen, Jens Kristian; Søndergaard, Henning; Kannegaard, Michell; Khatir, Dinah Sherzad; Finderup, Jeanette

JBI Evidence Synthesis 21(8):p 1582-1623, August 2023. | DOI: 10.11124/JBIES-22-00261

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