What are the measurements of chest health in children with neurodisabilities?
1) What measures have been used to assess chest health in children with neurodisabilities?
2) What measures of health are respresented, according to the International Classification of Functioning, Disability and Health?
3) What are the population characteristics of those using chest health measures?
4) What are the measurer characteristics of those implementing chest health measures?
5) What are the setting/environment characteristics in which chest health measures are used?
6) What psychometric properties exist for chest health measures?
7) What limitations or exclusions exist for chest health measures?
This review will include children aged 1-18 years with a neurodisability, described by Morris et al. (2013) as a group of congenital or acquired long-term conditions that are attributed to impairment of the brain and/or neuromuscular system and create functional limitations. A specific diagnosis may not be identified. Conditions may vary over time, occur alone or in combination, and include a broad range of severity and complexity. The impact may include difficulties with movement, cognition, hearing and vision, communication, emotion, and behaviour.
The concept of interest is measurement of chest health in children with a neurodisability. Measure of chest health will be defined as a assessment and/or monitoring of lung function and its associated structures. This may be measured at impairment or body structure level, but will also consider measures at activity or participation level, according to the International Classification of Functioning, Disability and Health. The measure may be implemented across any environment or setting, include objective, subjective or combined implementation and encompass measures undertaken by professionals, patients or their caregiver. It will not include invasive measurements.
Outcomes will include:
-Numbers of participants
-Age (mean / SD)
-Measure name (descriptive)
-Purpose of measure (descriptive)
-Subjective /objective / combined measure
-Level of health/disability measure (impairment, activity, participation)
-Measurer identity (Professional, patient, parent)
-Environment measure taken (home, hospital, outpatients, clinic, school, academic institute, labratory)
-Quantitative, qualitative or combined measure
-Level of data if applicable (nominal/ordinal/interval/ratio/NA)
-Reliability reported (yes/no)
-Validity reported? (yes/no)
-Responsiveness reported? (yes/no)
-Reasons given for non completion of test (yes/no) (+ reasons as free text)